Based on the stories collected in the essay La Scimmia che Vinse il Pulitzer. Personaggi, avventure e (buone) notizie dal futuro dell’informazione [The Monkey Who Won the Pulitzer. Characters, Adventures and (Good) News from the Future of Information, translator’s note] here we provide an outline of the main trends in the current digital information scenario. Beyond the much feared crisis of information, we are actually witnessing the appearance of a great number of initiatives and projects which attempt to keep last century’s journalism values alive (though with many economic contradictions)
At first glance it all seems so easy – scientists create new knowledge, and through their work they show which statements about the world are true and which are false. Science journalists pass these new discoveries on so that as many people as possible can learn about them and understand them. Prior to publication, it is the job of "fact checkers" to examine the journalists' texts to ensure that all the facts are correctly represented. In reality, however, the relationship between the actors is by far more complicated. Using my experience as fact checker of scientific texts for the news
Among the most interesting aspects of the changes in the media ecosystem a leading role is played by the impact of digital and networking technologies on the ways news reports are built. In this Jcom commentary, the issues of the relationship between digital storytelling and professional news production will focus on science journalism. The commentary will deal with theoretical reflections and practical examples of innovative experiences in which different narration methods were exploited for scientific information.
Since opening their doors in late 2006, personal genomics (PG) companies have faced skepticism and criticism from influential academic and government circles. While this has posed a clear problem of communication for these companies — one of effective promotion — I argue that the communication problem these companies face runs much deeper. It is a problem that lies at the heart of any genomics: the very understanding of communication and information around which genomics is built. While the value of genomic information for persons has been widely questioned, questions about the very notion of
Easy, cheap, efficient as online service often are. Direct to Consumer Genetic Testing (DCGT) represents a big evolution towards personalised medicine. If the phenomenon seems to be unstoppable, the first aim of its present and future developments should be the customers’ benefits. A certified quality of the services provided, a clear communication and a well-structured support to customers should be the critical conditions that could transform those online services in something really important: for the individual’s health and the society as a whole.
Since the early 2000s, anybody can buy genetic tests, directly sold on the Internet. These tests provide information about susceptibilities to some diseases and/or about ancestry. Thus, this article deals with a new e-market, whose scientific basis (validity of the tests) and status (as medical devices or consumer goods) are currently controversial. On one hand, we describe the tests and the advertisement and marketing strategies used by the companies (we made an inventory of about 40); on the other hand, we discuss several aspects on the basis of interviews conducted with users: first, the
Personal Genomics Companies are an emerging form of biotechnology startup that bring rapidly advancing whole genome technologies to a variety of commercial venues. With a combination of direct-to-consumer marketing, social media, and Web 2.0 applications these companies seek to create novel uses, including entertainment, for what is described as predictive medicine – that is the use of genetic marketers to create health forecasts that would allow individual’s healthcare to be tailored to their individual genomic data. In this brief piece, the authors use a critical cultural approach to
Direct-to-consumer (DTC) genetic testing has generated a great deal of social controversy. While the degree to which DTC testing actually causes harm remains uncertain, there is a consensus that the information provided by these companies should be accurate. Unfortunately, this is often not the case. Indeed, there are misrepresentations associated with all forms of testing, be it for superficial cosmetic services, athletic ability or disease predisposition. Countering this phenomenon will require a wide range of actions, including the use of formal regulatory mechanisms, the education of
Genetic testing promises to put the ability to decide about our life choices in our hands, as well as help solve crucial health problems by preventing the insurgence of diseases. But what happens when these exams are managed by private companies in a free market? Public communication and marketing have proven to be crucial battlefields on which companies companies need to engage in order to emerge. This issue of JCOM tries to shed some light on the communication and marketing practices used by private companies that sell direct-to-consumer genetic testing, from single genetic mutations to
Man, by his very nature, puts things between himself and the environment, turning the latter into a place, a space. He arranges the environment around him on multiple levels, by projecting parts of himself and shaping the frontiers and the horizons that surround, define and represent him. This was learnt a long time ago, but a trace and a memory remain in the way man acts: when mapping reality (both physical reality and the reality explored through digital means), we observe it and find a way through it by adopting behaviours that have always been similar. What has changed in this mapping is
Although the debates on the Internet (sceptical, enthusiastic and finally more mature ones) in our country started in the mid 90s, it is only over the past few years that the Internet, especially thanks to social networks, has become a daily practice for millions of Italians. Television still is the main medium to spread information, but as it becomes increasingly cross-bred with the Internet (and other media too), the information-spreading process deeply changes. This creates, also in our country, the preconditions for the development of a web public (an active and connected one), founded on
The Internet has become a worldwide phenomenon. It is undeniable that the Net has forcefully entered everyday life, ceasing to be a useful tool only for a small circle of researchers and academics, to become a new and versatile means of mass communication. And measuring Internet access and calculating the number of Internet users is not easy. By using the domain names registered in the “.it” as an endogenous metric, the Institute of Informatics and Telematics of the Italian National Research Council (IIT-CNR) carried out a research on Internet diffusion in Italy taking into account some major
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Domenico LaforenzaMaurizio MartinelliDavide Gualerzi