A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
People of color who live in low income, urban communities experience lower levels of educational attainment than whites and continue to be underrepresented in science at all educational and professional levels. It is widely accepted that this underrepresentation in science is related, not only to processes of historical exclusion and racism, but to how science is commonly taught and that investigating authentic, relevant science questions can improve engagement and learning of underrepresented students. Approaching science in these ways, however, requires new teaching practices, including ways of relating cross-culturally. In addition to inequity in science and broader educational outcomes, people of color from low income, urban communities experience high rates of certain health problems that can be directly or indirectly linked to mosquitoes. Recognizing that undertaking public health research and preventative outreach efforts in these communities is challenging, there is a critical need for an innovative approach that leverages local youth resources for epidemiological inquiry and education. Such an approach would motivate the pursuit of science among historically-excluded youth while, additionally, involving pre-service, in-service, and informal educators in joint participatory inquiry structured around opportunities to learn and practice authentic, ambitious science teaching and learning.
Our long-term goal is to interrupt the reproduction of educational and health disparities in a low-income, urban context and to support historically-excluded youth in their trajectories toward science. This will be accomplished through the overall objective of this project to promote authentic science, ambitious teaching, and an orientation to science pursuits among elementary students participating in a university-school-community partnership promise program, through inquiry focused on mosquitoes and human health. The following specific aims will be pursued in support of the objective:
1. Historically-excluded youth will develop authentic science knowledge, skills, and dispositions, as well as curiosity, interest, and positive identification with science, and motivation for continued science study by participating in a scientific community and engaging in the activities and discourses of the discipline. Teams of students and educators will engage in community-based participatory research aimed at assessing and responding to health and well-being issues that are linked to mosquitoes in urban, low-income communities. In addition, the study of mosquitoes will engage student curiosity and interest, enhance their positive identification with science, and motivate their continued study.
2. Informal and formal science educators will demonstrate competence in authentic and ambitious science teaching and model an affirming orientation toward cultural diversity in science. Pre-service, in-service, and informal educators will participate in courses and summer institutes where they will be exposed to ambitious teaching practices and gain proficiency, through reflective processes such as video study, in adapting traditional science curricula to authentic science goals that meet the needs of historically excluded youth.
3. Residents in the community will display more accurate understandings and transformed practices with respect to mosquitoes in the urban ecosystem in service of enhanced health and well-being. Residents will learn from an array of youth-produced, culturally responsive educational materials that will be part of an ongoing outreach and prevention campaign to raise community awareness of the interplay between humans and mosquitoes.
These outcomes are expected to have an important positive impact because they have potential for improving both immediate and long-term educational and health outcomes of youth and other residents in a low-income, urban community.
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TEAM MEMBERS:
Katherine Richardson BrunaLyric Colleen Bartholomay
Recruiting more research scientists from rural Appalachia is essential for reducing the critical public health disparities found in this region. As a designated medically underserved area, the people of Appalachia endure limited access to healthcare and accompanying public health education, and exhibit higher disease incidences and shorter lifespans than the conventional U.S. population (Pollard & Jacobsen, 2013). These health concerns, coupled with the fact that rural Appalachian adults are less likely to trust people from outside their communities, highlights the need for rural Appalachian youth to enter the biomedical, behavioral, and clinical research workforce. However, doing so requires not only the specific desire to pursue a science, technology, engineering, math, or medical science (STEMM) related degree, it also requires the more general desire to pursue post-secondary education at all. This is clearly not occurring in Tennessee’s rural Appalachian regions where nearly 75% of adults realize educational achievements only up to the high school level. Although a great deal of research and intervention has been done to increase students’ interest in STEMM disciplines, very little research has considered the unique barriers to higher education experienced by rural Appalachian youth. A critical gap in past interventions research is the failure to address these key pieces of the puzzle: combatting real and perceived barriers to higher education and STEMM pursuits in order to increase self-efficacy for, belief in the value of, and interest in pursuing an undergraduate degree. Such barriers are especially salient for rural Appalachian youth.
Our long-range goal is to increase the diversity of biomedical, clinical and behavioral research scientists by developing interventions that both reduce barriers to higher education and increase interest in pipeline STEMM majors among rural Appalachian high school students. Our objective in this application is to determine the extent to which a multifaceted intervention strategy combining interventions to address the barriers to and supports for higher education with interventions to increase interest in STEMM fields leads to increased intentions to pursue an undergraduate STEMM degree. Our hypothesis is that students who experience such interventions will show increases in important intrapersonal social-cognitive factors and in their intentions to pursue a postsecondary degree than students not exposed to such interventions. Based on the low numbers of students from this region who pursue post-secondary education and the research demonstrating the unique barriers faced by this and similar populations (Gibbons & Borders, 2010), we believe it is necessary to reduce perceived barriers to college-going in addition to helping students explore STEMM career options. In other words, it is not enough to simply offer immersive and hands-on research and exploratory career experiences to rural Appalachian youth; they need targeted interventions to help them understand college life, navigate financial planning for college, strategize ways to succeed in college, and interact with college-educated role models. Only this combination of general college-going and specific STEMM-field information can overcome the barriers faced by this population. Therefore, our specific aims are:
Specific Aim 1: Understand the role of barriers to and support for higher education in Appalachian high school students’ interest in pursuing STEMM-related undergraduate degrees. We will compare outcomes for students who participate in our interventions, designed to proactively reduce general college-going barriers while increasing support systems, to outcomes for students from closely matched schools who do not participate in these interventions to determine the extent to which such low-cost interventions, which can reach large numbers of students, are effective in increasing rural Appalachian youth’s intent to pursue STEMM-related undergraduate degrees.
Specific Aim 2: Develop sustainable interventions that decrease barriers to and increase support for higher education and that increase STEMM-related self-efficacy and interest. Throughout our project, we will integrate training for teachers and school counselors, nurture lasting community partnerships, and develop a website with comprehensive training modules to allow the schools to continue implementing the major features of the interventions long after funding ends.
This research is innovative because it is among the first to recognize the unique needs of this region by directly addressing barriers to and supports for higher education and integrating such barriers-focused interventions with more typical STEMM-focused interventions. Our model provides opportunities to assess college-going and STEMM-specific self-efficacy, outcome expectations, and barriers/supports, giving us a true understanding of how to best serve this group. Ultimately, this project will allow future researchers to understand the complex balance of services needed to increase the number of rural Appalachians entering the biomedical, behavioral, and clinical research science workforce.
Science is a way of knowing about the world. At once a process, a product, and an institution, science enables people to both engage in the construction of new knowledge as well as use information to achieve desired ends. Access to science—whether using knowledge or creating it—necessitates some level of familiarity with the enterprise and practice of science: we refer to this as science literacy.
Science literacy is desirable not only for individuals, but also for the health and well- being of communities and society. More than just basic knowledge of science facts, contemporary
The Science Museum of Minnesota (SMM) contracted Randi Korn & Associates, Inc. (RK&A) to simultaneously conduct a remedial evaluation of the exhibition Tissues of Life and its associated elements: the Web site with the same name, presentations at the Demonstration Station, and the What is Life?, play. The National Institutes of Health funded all elements. Data collection took place between July and October 2003. Three data collection strategies were employed: timing and tracking observations, uncued exit interviews, and telephone interviews. Additionally, to understand presenters' experiences
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Randi Korn & Associates, Inc.Science Museum of Minnesota
The Nanomedicine Explorer kiosk at the Museum of Science, Boston provides opportunities to learn about nanomedicine, nanotechnology, cancer biology, new research in cancer diagnosis and therapy, and the process of medical research from bench to bedside. This report is the formative evaluation of the prototype of this kiosk, presenting the results of visitor observations, exit surveys, and interviews. The findings of these data served to provide the Nanomedicine Explorer production team a basis from which to make improvements to the program, which was released as Version 1.0 in May of 2009
Public Television station WQED/Pittsburgh, in partnership with five medical research and clinical centers, proposes to develop, test and distribute a national biomedical video education program based on "The Universe Within," a planned PBS series. The project is intended to bring scientists and clinicians into closer contact with pre-college students to study human body systems and increase career interest in the life sciences. Designed to improve science education and literacy, the project will also enhance overall appreciation of achievements in biomedicine. Using advanced television, photographic and animation techniques, the project will create a collection of educational tools for use by science and health teachers as well as by scientific investigators and clinicians. These modules will demonstrate how most of the body's primary systems function and how they can be kept healthy. The approach will combine visual and print curriculum materials with the personal presence of medical scientists, thus providing an opportunity for students to develop interest, critical thinking and problem-solving skills. This flexible educational package can be updated as important new changes occur in medical science, thus extending the life of costly materials. In addition, through multiple narration tracks, the video elements can be customized for various levels of age and grade instruction.
The investigators address a major educational challenge by introducing a novel format and content for science education, (a) building on past successes; (b) combining development and dissemination at a new level; and (c) centered around an interactive planetarium show aimed to inform the public on an emerging scientific discipline and medical field: Tissue Engineering. For achieving a multitude of goals, the investigators propose the establishment of a unique partnership in scientific and medical education, bringing together university researchers, clinical leaders, science center experts, and students, educators and community representatives at all levels. The project is catalyzed by the Pittsburgh Tissue Engineering Initiative, a non-profit organization dedicated to the promotion of tissue engineering and its application to improving people's lives. The main goals fall in three categories, as follows: Education: - To communicate scientific information about the human body (principles of function will be emphasized over specific facts or terminology by focusing on a limited but fundamental set). -To convey the excitement and importance of tissue engineering research. The show will utilize engaging interactive demonstrations of tissue functions and illustrate the medical uses and potential of this field. Innovation: - To enhance the educational experience. The developers will use group-interactive technology as a tool for education by engaging participants as participants in the processing functions of the body. A special visualization/interactivity laboratory will be used where prototype interactive scenarios will be tested using focus groups, consultants and representatives of the target audiences. Dissemination: - To insure national distribution to other planetaria. The presentation system will utilize portable interactive technology (to be developed). It will be deployed to planetaria throughout the country, coordinated by the Association of Science and Techology Centers (ASTC). - To engage the target audience in the development process. Content development will be achieved by a consortium of leading research universities and medical centers, with input from a panel of worldclass experts. Visualization, interactivity and sound technologies will be developed in Pittsburgh, in a unique collaboration between the arts and sciences, based on past successes. Evaluation activities will be extensive, as will the range and targets of the spin-off educational materials. The Carnegie Science Center planetarium itself will serve in achieving group immersive visualization, akin to virtual reality, for improving target audience involvement. The expected outcome is a new way of delivering educational content, and a better understanding of the emerging field of tissue engineering by the general public.
Serial Passage: AIDS, Race, and Culture is a multi-part documentary series. The Long-term goals are: 1) to produce a documentary series exploring the specific and devastating impact of H.I.V./AIDS upon Africans and African-Americans; and 2) to create a heightened understanding of the need for H.I.V. prevention among the high-risk group of young, inner-city African-Americans who've so far proved unresponsive to available public health information. Specific Aims: 1) To deconstruct the racial stigma of AIDS, and scientifically confront the conspiracy theories which are firmly linked to the disease in black America, and in Africa; and 2) to work with an inner-city high school science class, actively involving them in the making of the series. Research Design and Methods: 1) To document on film the process of scientific inquiry which led two prominent researchers to their theory on the origin of AIDS; 2) To document on film the social impact of H.I.V/AIDS upon specific African countries, including Uganda and South Africa, and upon African-American communities in the United States; 3) To periodically screen footage of the documentary for the high school class and conduct videotaped discussions between the students and the scientists throughout one academic year; and 4) To give the students a videotaped questionnaire at the beginning and end of the year designed to measure how much they learn about AIDS and its impact upon their particular community.
JOURNEY TO PLANET EARTH is a new television science series and outreach initiative from Emmy award- winning producers Marilyn and Hal Weiner. With a comprehensive informal and formal education program designed by the Chicago Academy of Sciences, the project will educate and motivate millions of people about the most important health and environmental issues of the 21st century. Against a backdrop of scientific findings illustrating the complexity and fragility of the Earth's natural systems, the series will provide a much needed perspective to help students and the general public understand and cope with the difficulties of developing a global agenda that addresses the health and environmental concerns of the next millennium. JOURNEY TO PLANET EARTH's outreach initiative targets middle-school aged youth in a variety of informal and formal educational contexts, including ten of the country's leading science museums. It is supported by a comprehensive evaluation program and strategic outreach partnerships with organizations such as the North American Association for Environmental Education, the Geological Survey, the International Food Policy Research Institute, the National 4-H, the Department of Agriculture's Classroom Program, the GLOBE Program and AAAS.
The Internet has seen an explosive growth in the past few years, and masses of information on cancer are readily available to anyone with a live connection. Unfortunately, the vast majority of this information is presented in long test passages, with few illustrations and non multi- media elements to increase user interest. Absent are materials that help people appreciate how basic research in cancer genetics is being rapidly translated into new options for diagnosis, treatment and prevention. We seek support to create an extensive WWW site, Inside Cancer, which literally will take people into the workings of the cancer cell and into the laboratories of scientists who are revolutionizing cancer research. Building upon the project staff's strong experience in building multimedia WWW sites, Inside Cancer will make use of the most up-todate technology to merge animation and video into a visually stimulating experience. At the same time, the project draws scientific authority from a world-renowned research institute and advisors who have played important roles in the development of modern cancer research. Five modules will be developed. What is Cancer? quickly answers this and other related questions in short animations and prepares more curious visitors for the next modules. Cancer in the Laboratory features researchers explaining animated sequences of their own experiments, which laid the foundation for understanding cancer at the molecular level. Cancer Causes and Prevention animates the molecular events triggered by carcinogens, such as tobacco smoke and diet and emphasizes how lifestyle changes can reduce cancer risk. In Cancer Diagnosis and Treatment visitors shadow doctors making a cancer diagnosis, showing the connections between cancer cell alterations and new treatment options. Pathways to Cancer takes visitors on a 3-dimensional tour of a cell and its signaling pathways, then allows them to see downstream effects of mutations and their relation to cancer evelopment. As new findings and therapies are discovered, we will update the modules to keep Inside Cancer current.
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TEAM MEMBERS:
David MicklosShirley ChanSusan Lauter
The American Museum of Natural History requests SEPA support for a five-year development and implementation project entitled "Human Health and 'Human Bulletins': Scientists and Teens Explore Health Sciences in the Museum and World At Large." The program has three complementary components: (1) the development of 7 new productions for the Museum's digital media/documentary exhibition program, Human Bulletins http://sciencebulletins.amnh.org) featuring the newest health-related research; (2) a mini-course, entitled Hot Topics in Health Research NOW, an intensive after school program covering genetics, epidemiology, human health and human evolution, including a section on ethics in research; and (3) A "drop-in" Human Bulletins Science Club, where students meet monthly to watch a Human Bulletin visual news program, engage in informal discussions with significant researchers in the fields of evolutionary science and human health. The main goals of this project are: (1) to inform young people about emerging health-related research by using the Human Bulletins as core content for programming and points of engagement; (2) to promote a life-long interest in science among participants by teaching them how health-related science research could potentially affect them or their families; (3) to empower teens to critically assess the science presented to them in the Museum and in the world at large by teaching them to break down the "information bytes" of the Human Bulletins and to analyze how stories are presented visually and how to find answers to questions raised by the Bulletins; (4) for the young people in the program to see themselves as participants in the Museum by developing "mentor" relationships with Museum staff. This will allow students to see AMNH as an enduring institution to be used as a resource throughout their education and careers; and (5) to give students the means to envision themselves with future careers in science, research and in museums (thus fostering new generation of culturally-diverse, culturally enriched scientific leaders) by introducing them to scientists in an informal setting where there are no consequences for making mistakes or asking questions. The students will be given "behind the scenes" looks at new career options through the scientists featured in the Bulletins and the NIH funded researchers on the Advisory Board presenting at the informal sessions. Ultimately, the project aims to give students to critically process the information they receive about public health, see the relevance of human health science to their lives and pursue careers in health science. All of these skills are measurable through formative and summative evaluation. This project will teach young people to understand information about public health that is presented to them through visual and popular media as well as through formal scientific texts. It will also teach them to think about how human health sciences impact their lives and how the decisions they make impact larger human health. Finally, the program will also encourage students to pursue careers and further information about public health.